In 2018 I was diagnosed with Primary Lateral Sclerosis (PLS) a rare degenerative motor neuron disease at the age of 42. Forced to leave my career as a Social Media Advisor for the federal government, I am now learning how to navigate life in this new reality.

This blog explores life after diagnosis and living life as best as you can despite uncontrollable and challenging circumstances. I also have a dark sense of humour and make no apologies. If you expect roses, this blog may not be your flower garden.

I live in Canada’s capital with my husband, and two school-aged children. Usually you can find me at the gym, on a dragon boat, in my puddle, playing games with my kids, or with my nose in a book. The odd time, I also get on a plane and try and see the world.

 

 

CAVEATS:

This blog is based my opinions and my experiences only. I don’t speak for the wider community of people with PLS (or any other disease) and often our symptoms and trajectories differ.  In the case where I mention a treatment or protocol I do so with no authority and recommend that any changes you want to make in lifestyle/drugs/supplements are discussed with your medical and professional team to see if they are right for you.

Monetization policy & disclosure: this blog is a passion project and is not monetized. If and when that changes, detailed information on monetization will be found here. This blog is not my job and therefore I update it if and when I have the time and energy – both of which in my case is often in short supply.

Comment policy: while I enjoy a rousing debate periodically, there are only so many hours in the day that I am available for online activities. I dedicate a maximum of an hour a day to civil online activities (including personal social media), so I have decided to not allow comments on this blog.

You can find me also on Instagram and (as an experiment) Substack.