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Stop selling us out!

Stop selling us out!

A few times a year people will send me a link to a “mobility device” that is actually not an accepted mobility device at all. In the “about us” section there is a quote about why the owner designed it and the reason was: the person she designed it for didn’t want to “look disabled” by using approved mobility devices such as walkers and scooters.

The TL;DR of this is: you are disabled and should feel badly about looking so uncool! Here, buy my overpriced contraption that isn’t approved by any authority at all so you look a little less uncool!

I feel the same about mobility devices that I feel about the way words change over time to become pejoratives, so we keep having to change them. If people would just stop shaming others by, say, calling them the R word, using the R word would have never become problematic. I am sure intellectually and/or developmentally disabled will eventually lose some cultural runway as we turn those terms negative as well*.

But at the crux of both of these issues is this: we are “othering” people for getting old and/or losing mobility. But we fail to see that we are the problem for not normalizing getting older or becoming disabled. Given that over a quarter of the population will become at least temporarily disabled in their lifetimes, you would think it would be more accepted. For me, I feel that because I became disabled at a younger age I had less of an issue transitioning to mobility devices. But christ on a cracker: are old people ok? They get BIG MAD at even the suggestion that they aren’t young anymore and it drives me bonkers. It also seems to be a mostly Boomer issue**, judging by our parents. My FIL fell out of a tree and lay in the backyard for hours because he still insists on doing his own yardwork and my dad still gets up on his roof to remove the snow. It’s absolutely ridiculous – oh and they are both still doing it.

But time to grab an apple juice and sit cross-cross-apple-sauce on the classroom carpet (or any other accessible space that makes you feel comfy!) because it is storytime, kids!

On our recent trip to the Dominican Republic I experienced this phenomenon first hand with the world’s most irritating, entitled Boomer couples I have ever had the displeasure of encountering. So to fair Verona…I mean, Punta Cana… where we lay our scene, I will draw your attention to the following:

Instead of having a bunch of seats at the gate they had more of a security line set up where you wind around until you get to the front. As someone with a mobility device, I had a few questions. You see, at the Punta Cana airport they have a bus to take you to the tarmac so I needed to speak to the gate check clerk and see if the busses had ramps*** and what the protocol would be. This is standard protocol when you are disabled: you better get to the airport early and you better confirm time-and-time again what the process will be because chances are someone with argue/disagree and many phone calls and elaborate discussions with staff will ensue. So I went around the line to speak with the gate clerk. She told me that they did have ramps, I could get on with my scooter just fine, and then she told me to wait up front to ensure I got on the bus first before they let everyone else on. So I waited beside the counter, like I was told.

When I travel with my family, I make my kids stand so that other people can sit down. But since many people don’t realize that they live in a world with people who cannot, say, stand on a moving bus, I make my kids sit in seats and as soon as I see an elderly person or a person with limited mobility get on, I make my kids move. So as people started to pile onto the bus, I noticed an older couple coming towards us when all of the seats were full. I motioned to them to come, my kids got up and the couple was grateful for the seats.

As this was happening, I realized that a voice behind me was increasing in pitch and ferocity. It was something about it “not fair that we don’t get seats!” and “he has bad knees and I have just had a hip operation!” They had loaded from the back of the bus and my scooter was facing the front so I just didn’t see them get on. I guess one person gave her their seat because she seems to have calmed down at that point. We rode off towards the tarmac.

Once we boarded the plane, I realized that the Boomer couple were in the first row, kitty-corner, in front of me (I was in 2C). I then remembered that we had the exact seating arrangement on the way there and that I had just not noticed the couple because they were assigned seats 1E and 1 F. Seats 1A, B, C, and D were assigned to a lovely family with the parents being in the aisle seats. I suspect that the wife wasn’t a good flyer because I had noticed that they held hands across the aisle on the way there when the flight was taking off and landing.

On the way back I noticed that the Boomer husband was loudly…booming. He was complaining about his knees and how he needed more room and how awful it was that the aisle seat had been already booked when they got their seats! He was speaking generally in his wife’s direction but clearly this shame-enducing diatribe was intended for the seats around them. Then of course – gaining no tracking for his passive-aggressive moaning – he started in on the Dad in the aisle seat with his complaints. Eventually the Dad offered to switch seats with the Booming Boomer and that led to the incredibly forced, “Gosh, are you sure?! It’s just to hard on me with my knees! Wow, you are so great for offering!” Like this guy really had a choice! He then proceeded to tell every single person who lined up for the bathroom in the aisle beside him about his and his wife’s personal medical history and how it was so difficult to travel without an aisle seat. Over. And over. And over again. The entire flight. For his pièce de résistance he said, “Lady, don’t get old! I am telling you, it’s really hard to go through all of this and not being able to do things like you used to!”

My dude, I am RIGHT HERE. You watched me get on the plane.

But this brings up an important point that I alluded to at the beginning of this post: old people are constantly throwing disabled people under the bus and they either don’t realize or don’t care. Probably both since they don’t see themselves as old (not really) or as a disabled despite their clear lack of mobility.

Firstly, growing old is a gift that is often denied to many. Instead of the constant complaining, sir, practice some GD gratitude. If you’d like, I can hook you up to some perspective in form of a woman diagnosed with ALS who has four small children under 8-years-old if this is difficult for you. This isn’t to say that it isn’t ok for you to mourn the loss of your youth and mobility. Of course we are all entitled to navigate the emotionality of change! But screaming your own personal issues to every stranger within 10 feet is rude and selfish. What I did find fascinating was that he targeted mostly older women who felt that they had to be “nice” to him. No one younger than 50 gave him the time of day for his incessant whining. They just nodded and turned their heads to look in a different direction while they waited for the rest room. Instead of getting the hint, he just spoke louder to anyone who made the mistake of making eye contact with him.

Secondly, if you want accommodation, ASK FOR ACCOMODATION. Don’t wait until you are lined up to get on the flight to whine about disabled people going first or other people booking the seats that you wanted. Airlines (and other businesses) will accommodate you if you ask but if you refuse to see yourself as a person who requires accommodation then that is a YOU problem that you are making everyone else’s problem at the very last second. Not only does that mean that airlines (and other businesses) won’t allow for more accessible availability, it also means that you are throwing disabled people under the bus by pretending that there are more able-bodied people than there actually are.

When I make a restaurant reservation I ask for low seating or booth seating, I make sure we won’t be seated in a place where there are stairs, I make sure there are first floor, accessible bathrooms. Is it a pain in the ass? YES. But the alternative is showing up and having to make the staff panic and force other people from their tables just so I can be accommodated. When I buy tickets for an event I make sure to contact the box office in case there are SURPRISE stairs. I never go to General Admission shows or open seating because I need a seat and I need it to be accessible. I just can’t take a chance that when I get there, there won’t be seats I can get to. Most people consider “only one step” as accessible in their minds and for many people it isn’t. For me, it’s important to know if there is a railing. It’s absolutely exhausting but if I want to have any semblance of a life, the legwork is part of that.

When I first was diagnosed a woman I know who is a physiotherapist said, “Man, if you were only older, I could hook you up with so many resources!” The reality is that between 18-65 most resources for disabled people are incredibly sparse. But there are a TON of resources for seniors to help with a variety of home maintenance/chores to social clubs and events. But they don’t access these services and I have even had one elderly person tell me that they don’t want to, “hang out with old people.” LAIRD TUNDERIN’ JAYZUS: you are old people!

I guess what it comes down to is that if you are struggling with a disability or need an accommodation – whether it is visible or invisible, temporary or permanent – please ask for the assistance. Please use the provided services. Please do not suffer through it and pretend that it is ok to make anyone who needs support to go without it. Not only will it make your life easier but it also paves the way for people who also need accommodations in the future to be able to get them. No one will think you are a hero for struggling up a flight of stairs dragging a broken leg behind you but you will certainly be a hero for paving the way by letting businesses and organizations know that have good access protocols in place makes sense. The key is to not just open a door and leave it open, but to install a door opener for those that need it… and to make sure it works.


* “Concepts, not words are in charge. Give a concept a new name and the name becomes coloured by the concept the concept does not become freshened by the name.” – Steven Pinker, The Language Instinct

**I know it’s du rigeur to shit on Boomers but they really don’t accept that they need to slow down.

***When we got to the DR in the first place they didn’t bring my scooter to the gate and I ended up being forced into a wheelchair. I had to scream at the guy to stop because he was trying to whisk me away but my family was still on the plane. Because he didn’t speak English the flight attendant had to get involved and it was a whole THING that didn’t need to be a THING had they just brought my scooter like they were supposed to. They ended up losing it, which is not shocking if you have ever traveled as a disabled person. On the way back, I was allowed to use my scooter until the gate.

What is luxury?

What is luxury?


But it is pretty, I will give it that

I just got back from a week at the Royalton Punta Cana in a Diamond Club swim-up room. It was to be our last HURRAH trip as a family. The Eldest goes into grade 11 next year, The Youngest starts high school and Mr. Tucker wants to retire so we figured we would have one last blow-out before settling down for a bit. We splurged & paid quite a lot for the trip and it was…mediocre. If I was to be completely honest, I felt like it was a huge bait-and-switch and was not as advertised. But what I really want to discuss is the elusive concept of luxury and why I tend to upgrade as much as I can afford to when I travel. But it’s not truly luxury for me: the idea of paying a luxury price is to overcome barriers for disabled people.

If you asked my kids or anyone from Gen-Z what their definition of luxury is, they would probably list off a bunch of things that they’ve seen on TikTok: private airplanes, certain fashion brands, sports cars, large homes and (for some strange reason) fancy ice. When you are young you tend to think of THINGS as luxury because you tend to have few things and not a lot of money. But as a woman of a certain age I do have enough things and I also have enough money. So, if I had to define luxury right now in relation to my own life, it would be: the ability to minimalize friction by throwing money at a problem*.

Over the years, my idea of a good vacation slowly changed. I used to camp with my own equipment in my 20s. By the time I had kids in my 30s and had small kids, it was all about Glamping, then we started renting rustic cabins, and today I won’t rent a cottage that doesn’t have a certain level of amenities. When I was young I had mobility and a high tolerance for friction but no money. As I got older, that reversed course. In my 20s, I would have told you that there would be no way you would ever catch me dead lying on a Caribbean beach somewhere doing nothing. As far as I was concerned, travel was about seeing and experiencing things, about culture and history, about new food and drink! It was about backpacking and hostelling and $15 CAD Ryanair flights and sometimes just taking off for the weekend to Montreal with 20 bucks in my pocket and a floor to crash on. The adventures made the stories and honestly, I was able to do a lot of very cool things for not a lot of money. I was very proud of this fact and so completely convinced that this was the ONLY way to travel and experience the world. No pre-planned tours or packaged vacations for me, thankyouverymuch, I am here to live like a local!**

As you age and/or lose mobility the amount you are willing to pay to smooth over the friction that eats up your time and patience increases. Now that I have money but less mobility***, I use it to try grind off the edges of how user-hostile things have become. Keeping with the theme of travel, here are a few things I have done to minimize friction:

– The entire family has Nexxus/Global Entry cards.
– I have a credit card that gives me free luggage, insurance and other travel perks.
– I upgrade my airplane seats and use the priority line.
– Because I have a scooter to gate check, I always arrive early (and yes, there is always a problem).
– I have upgraded to the ship-within-a-ship cruise concept to minimize waiting for anything and to ensure I always have a large suite, an accessible seat at the theatre, that I am not left standing outside waiting for anything, that I get reservations for everything I want to do and to get special requests actioned quickly.
– I get private transport when possible because a bus transport may – or may not – be accessible for me and it’s a very difficult thing to know in advance because most people don’t know the difference between a step I can manage on a bus and one I cannot.

I know people will read this and think, “oh boo hoo, a luxury experience wasn’t good enough!” But it is more about being sold one thing and getting a completely different experience. I pay for the extras because walking is difficult, getting up is difficult, managing a buffet with a scooter is super difficult so instead I pay to reduce these things. My idea of luxury, again, is to smooth out the rough edges of an experience, or, put another way: I pay for upgrades just to have a similar experience to what an able-bodied person gets at a base tier.

What I found with this last trip though is that we spent a fortune on a “luxury” experience (swim out room! Turn down service! Butler! Priority reservations!) and got closer to a budget experience (pool is disgusting and full of detritus! Mold and must in the AC! No towels! Room looks like it was shot up in a war! Only resos are at 7:30pm!). I suspect that it has something to do with revenge travel that still looks to be going strong. I follow some travel folks on social media who are saying that deals on cruises aren’t really happening because they are finding their itineraries booked solid. What makes for less incentives for sales also makes for less incentives for customer service, too. I suspect that it what happened with our trip: the resort has no incentive to deliver on their promises because for every customer who is dissatisfied, there are 10 more lined up to pay for a garbage experience.

In the end, we feel completely scammed but if I was to takeaway a positive from this experience, it is this: it confirmed our decision to stay put until the kids are out of high school. When we got home last week I had never been so grateful to fall asleep in my own bed. Coming home, in fact, must be the most luxurious experience of them all.


*I want this on my tombstone.

** We love the myth of the “authentic travel experience,” even though it doesn’t actually exist. We pooh pooh the idea of all-inclusive resorts and cruises (or even hotels, really) as culturally bereft even though the idea that you can have a genuine “authentic” experience has been debunked in multiple articles such as this one and that one. But as I’ve aged I have come to appreciate the pre-packaged, they-come-they-spend-they-leave vacation as something that can be good for the soul, if only because a change of location is good for the mind.

*** The poverty rate for people disabilities is twice as high than for people who do not have disabilities. In 2021, 16.5% of people with disabilities lived in poverty, representing more than 1.5 million people. This is compared to compared to 8.6% of people without disabilities,” (source). Being disabled is incredibly expensive as well. So not only do you make less money you also have to spend more on just the day-to-day costs of living.

The different stages of a good life

The different stages of a good life

When I was in my teens and 20s my idea of travel were of traipsing around Europe staying in hostels and meeting new people. I was raised by someone who loved travel to exotic locales and who had traveled extensively so it was a natural fit. I did do some of that when I was younger and it was lovely.

Conversely, my paternal grandparents owned a condo in Florida and drove down in the winters where they stayed for 4-6 months a year. When I was younger the idea absolutely repulsed me: why bother going anywhere that you wouldn’t experience history, culture and art? I wanted new landscapes and new food and to meet new people! It confounded me that they had never left the continent and I couldn’t see the value in going to the same place year-after-year. I also never understood the concept of sitting on a beach all day. ZZZZZ…boring! Cruising? Well that was for the newly wed and the nearly dead!

Mr. Tucker and I ended up getting married in the Caribbean because my parents paid for it and one of them was very keen to plan it in a certain place on a certain beach. I was neutral on the place but we did end up having an amazing week. When we arrived Mr. Tucker and I sat on a beach for the first time with a drink and he turned to me and said, “NOW I get why people enjoy this so much!”

When I was in my 20s I also had dreamed of owning a country house with acreage where we would be self-sufficient so that we wouldn’t need to have as much of an income. I had been inspired by The Tightwad Gazette and books that Helen and Scott Nearing wrote. While Mr. Tucker and I sat in our 530sq ft condo downtown, we often would look at farms for sale. At one point we were even starting to look at properties that would fit the bill.

In the end, when I got pregnant with the eldest we ended up in a mid-century suburb having traded homes with a relative who also owned half of the condo. Mr. Tucker was not happy but this relative always wanted to retire in the condo so we sucked it up and moved into the house. It remains to this day the biggest fight we have ever had. Not all was lost though: we met some really great friends in that neighbourhood, people who we continue to be close with to this day. Unfortunately, the relative had told us that they would sell us the house at one price and then reneged on the deal because condo life hadn’t turned out the way they wanted it & they wanted their house back. They signed the condo over to me (we had invested a lot in the house) and we all know how that is going.

We ended up buying a new house also in a mid-century suburb because by the time we were forced to move, the shine on the country life had worn off. Our kids were 7 and 9 at the time and were used to the amenities of the city, I had a career, was investigating ongoing medical issues at the time, and we wanted the kids to stay in the same school system. Oh, and I did want a puddle.

We don’t regret the decision now that we are middle-aged and in retrospect a farm would have taken our lives in a completely different direction. We probably would have ended up back in the city anyway with my medical needs.

So what gives?

Age gives.
Mobility gives.
Finances give.
…and life changes.

You change.

It happens slowly over time but your ideas about the future change when it actually becomes the future. If we had pursued our dream of owning a farm and being self-sufficient it would have been disastrous when I became disabled. I probably wouldn’t had my career and with it the disability benefits that pay 70% of my pre-disability salary (indexed to inflation). It would have left us scrambling for money and resources. I am grateful that the dreams I had in my 20s didn’t come to fruition, it would have ruined my middle age.

We have also had multiple cruise vacations (you can’t hostel through the Panama Canal) and have a beach resort vacation planned for this winter. We have changed so substantially in the 21 years that we have been together.

Now, at 47, I even see why my grandparents bought a place in Florida: as you get older, the winters feel harsher, walking in the ice and snow becomes more dangerous and the lack of sun really affects you. Last year I read an article about Margaritaville in the New Yorker and I didn’t feel revulsion, it made complete sense! This isn’t to say that I am rushing out to buy a house there but it occurred to me that for a certain group of people living there is an absolute dream.

Mr. Tucker and I have been discussing our ideas of what a good life really is. We used to dream of him retiring early and us being able to take off and travel the world. But going to Puerto Rico in 2022 for two weeks was an absolute nightmare. Travel post-pandemic was a nightmare (4 hours to get through security in Toronto), when we got there it was a comedy of errors (bald tires on the rental, getting lost in the mountains, roaches in the hotel room, no restaurants open in the town we stayed in etc.) and it has since really turned Mr. Tucker off of travel. While we still laugh at the stories we have from that trip the sour taste still hasn’t been completely eliminated from his mouth.

The only reason I got Mr. Tucker to agree to a trip this winter is that it is a> a direct flight; b> an all-inclusive resort; c> he will theoretically be retired so he won’t have to leap back into work if it is a horrible experience. Our trip in 2022 felt to him like work and then he had to jump right back into work when he got back.

Life is a series of experiences and those experiences lead to change about what you consider a good life. 14-year-old me loved go to the mall and shop for name brand clothes I could show off to my friends. I couldn’t have imagined ever NOT wanting to go shopping when I was that age. 47-year-old me avoids the mall like the plague. I also hate the idea of more stuff to clean, maintain and store. Impressing other people also holds no interest for me. Age is also why driving down to Florida for a month in the winter becomes more appealing over time as flying has become more hostile, post-pandemic. Getting to the airport early and dealing with delayed or canceled flights seems like more of a nightmare than just driving and taking our time. 24-year-old adventurous travel me is not 47-year-old mobility-impaired me. We are completely different people with different needs, goals and desires.

This isn’t to say that we wont fly places and travel more when good deals come up, I am just saying that I finally understand why people enjoy different types of travel. For our future travel, it may just look more tempered and less adventurous. When Mr. Tucker retires we will still have 5 years until the last kid turns 18 so a lot of that time will be spent staying home. Next year the eldest will be in grade 11 (here the biggest years to get into university rely on your grades for 11&12) so we won’t be able to pull her out of school to take advantage of a good travel deal. Also, the kids will be working in the summer so travel will be out during summer holidays as well.

Recently, Mr. Tucker and I were discussing how excited we both were to build new gaming computers this November. He got pensive for a minute and then said, “you know what? Even if we never traveled again, I would be ok with that. I like that we have our little house that has everything we need and we have a really good life right here.” To be honest, I have to agree. We have SEEN a lot and DONE a lot and if we never get to travel again we will have still done more travel than most people. Having a cozy little life with a roof over our heads and food in our bellies, time to work on our hobbies and see our friends IS a good life. A very good life, indeed. And that is enough.

Friendsgiving 2023

Friendsgiving 2023

If I was to tell my younger self that one of the biggest hurdles of my adult life was to book travel accommodations my younger self would laugh in my face. But yet, every year there is a challenge.

Back when we traveled every summer with two other families it was finding 3 cottages on one lot (that wasn’t a huge resort with multiple cottages). Now it is that alongside accessibility challenges and an adult who can’t drive as far due to his own disability. In short, a tall order.

But even when I do get it right, I get it wrong. We originally planned this weekend in the early spring and of course I thought I had done all of the due diligence with asking about accessibility. However, every time I ask I learn that I either need to be more clear about my needs or that the owners need to be more clear about how inaccessible their property is.

When I first emailed the place we stayed this past weekend I said that I do have mobility issues but that I can manage a step up as I walk with sidearm crutches and have balance issues. So the owner recommended one cottage and I went ahead and booked it. Sadly, the cottage was THREE incredible steep/tall DIY’d steps up, no railing, and the deck was a minefield of holes where the wood had rotted through. He offered us a smaller cottage with one step but it was on a bit of a hill I couldn’t get down and it had no deck at all. I ended up taking the first cottage and getting up the stairs by sitting on the deck, swinging my legs onto the deck and then using a picnic table to push up to standing. Not ideal but from there the entire cottage was on one level, so…partial win?

But as it turns out, the entire property was pretty inaccessible, the cottages were far apart and on steep inclines and even my able-bodied friends had challenges walking around. There were also no lights on the property and it was right up against the highway. One of the other parents said, “If I had booked these cottages and I had small children, I would be pissed that the cottages were next to the road.” The pictures make it look like all of the property is flat and on even ground & secluded but there was no way to even walk to the beach without hiking up and over a hill, so that was a challenge.

We usually do these weekends for the kids so that they can get out into nature and run around with their friends but I would be lying if I didn’t say I felt a little cheated by the entire property. In the end it rained the entire time we were there so it worked out since no one could really go outside and enjoy the fall weather. Also, since we had the larger cottage everyone came to me to hang out, so again, a win.

I wish that it was law to actually post the accessibility availability for all rentals. Not forcing owners to actually have accessible places (but with an aging population, there is definitely a need for that!) but to indicate how wide doorways are, if there are ramps, if the stairs are to code etc. as well as to mention if the grounds are flat or sloped. I feel like the pictures we saw on the website really bait-and-switched us into renting places that were unlike what was described. A non-accessible example would be that two cottages claimed to have loft spaces but the ladders of the loft were rickety and dangerous and once my kids got up to look around, it was basically a plywood platform. Not the fun hideaway they thought it would be. On top of that, one of our friends had non-potable water and had to run to our place to fill bottles. Had they been alone and all of the other cottages had been rented to strangers…what then?

It seemed to be a mishmash of nightmares but since we were already there we decided to make the best of it. We did end up having a wonderful Thanksgiving dinner that Mr. Tucker cooked, the kids got to run around with other kids, the adults spent Friday night up late chatting and we all got some fresh air and a change of scenery. Honestly though, my favourite part of the weekend was driving there and back. I could have saved myself $900 by just tossing the family in the car and going for a long country drive instead.

It’s a cruel, cruel summer

It’s a cruel, cruel summer

This year we didn’t go away in winter, instead we saved our money in order to pay off our house (which we will do in September). So naturally, I spent most of the winter looking forward to the summer when I could spend most of my days in our gorgeous backyard swimming, gardening and enjoying the sun. I was also looking forward to getting back into Dragon Boat as I hadn’t been back since the pandemic.

Man plans, god laughs

The youngest child also joined a Dragon Boat team this year and we both spent Saturday of the Dragon Boat Festival racing, enjoying the company of our friends, cheering on other teams and eating fun food. We went home Saturday night and had a lovely sleep after a big day with an early start.

Sunday morning was already looking dicey with the wildfires but we headed off in a friend’s car under the glowing red ball that was the sun. I am kicking myself in retrospect but instead of changing into a pair of sneakers, I just kept my slide-on Crocs on. I should have taken the 2 minutes to change but I was eager to get to the tent and grab a coffee. We walked in the gates & I started towards the beach. Unfortunately, the grass/sand mixture was horribly uneven and I managed to clip my foot on a tree root and despite trying to catch myself, I managed to seriously hurt my foot, which started to swell immediately.

My teammates witnessed this, rushed over, got me a chair and an ice pack and a friend headed over to the first aid tent to grab one of the First Aid volunteers from the ski patrol. He came, determined there was nothing he could do and soon after I found myself whisked off to the hospital.

Poor Mr. Tucker: with the youngest and I off to the ODBF and the eldest off at a sleepover, he was really looking forward to a day to himself doing music and playing video games. Sadly, he had just sat down with a cup of coffee when I texted him to meet me at the hospital. I felt terrible.

Thankfully, we didn’t wait long to be seen and an x-ray, a CT scan and a stand-up x-ray later (REALLY? That was just mean). It was determined that I had a hairline fracture in my foot so it’s an air cast and 5-6 weeks off of my feet. A follow-up appointment with orthopedics the Wednesday of that week also saw a hairline fracture in my fibula. “You’re really great at breaking things,” said the orthopedic doc. Oh am I ever! The advice was the same for both fractures: stay off it for a bit over a month.

Teetering on the edge

The next morning Mr. Tucker went out and rented me a wheelchair which I have now essentially lived in for a month as I gaze longingly at my pool from inside the house. I would be lying if I said it has been an easy month of healing and binge watching bad tv. Instead, Mr. Tucker has now had to ferry the kids around to work and camps as well as manage day-to-day things such as meals and helping me in/out from the wheelchair. He had originally booked off two weeks in July so that we could get a bunch of house stuff done but that has been significantly railroaded by my injury.

He was cranky, I was cranky, we both feel cheated out of the summer we were looking forward to.

Going with the flow

As a distraction from all of the absolute CARP that descended upon us, I tried distracting myself in the following ways, all of which are working in some capacity:

Booking a winter trip: I contacted a local travel agent that specializes in accessible travel and started looking at a trip for March break. My life is a constant battle against the kid’s school schedules, money limitations and how my mobility is going. We’ve decided to splurge and just go on an all-inclusive trip this winter. We are still ironing out the details but it’s been a lovely distraction from having my summer being taken away from me by my injury.

Mr. Tucker and I sat down and did a financial plan – together: usually I create the plan and we sit down and discuss it. But I felt like a lot of it didn’t feel real to him and were just a bunch of numbers on a page. So we sat down with a clean spreadsheet and worked through our numbers together. It was a great exercise for him to actually help create the plan and see for himself how we can plot things for his retirement. He told me that this process made him feel a lot better about all of the bad luck. We also are both really excited about our goals!

Mr. Tucker finished the vacation chores: because things were absolutely bonkers, tasks that should have been organized and done on his vacation did not get done and he was feeling overwhelmed. So he enlisted the children and pretty much got almost all of the outdoor chores done, which allowed him to relax for the second week of his vacation.

I gave myself time and space to make a decision: …about dragon boat. In the end, I gave my seat in the boat up to a friend who is an amazing paddler and I switched myself to being a spare, if needed. I just needed someone who could commit to the team for the next festival and even if I did the full 6 weeks, it would only be two practices before I had to compete. It’s not great for the team so it just made more sense to give up my spot.

I discovered Task Master: which is a hilarious show where comedians compete against each other by doing silly things for dumb prizes. If you need to sink yourself into something hilarious and low stakes, I highly recommend it.

It’s still just horrible luck and I have another week or two until I can walk with any regularity. BUT on a positive note, I will still have a lot of August to enjoy the pool and the garden is producing quite well right now. I will still probably be able to get a couple of paddles in, and Mr. Tucker and I have been buoyed by our new goals. Life throws you curveballs and it can be super difficult to navigate them sometimes but eventually good things will happen, just wait and see.

The Wordle is my love language

The Wordle is my love language

I am in a group chat with some of my oldest and dearest friends. We all met in our early 20s thanks to the internet & a friend who had a 200 acre farm in eastern Ontario. I was a relatively early adopter of the internet in 1994 (with my wee 2400 baud modem), when I was 18. It wasn’t that I was particularly good at computers but that everyone else around me was. My farm-dwelling friend had a local BBS and frequented Usenet where she had met all of these other like-minded people.

In the mid-90s she decided to start something called The Freak Family Picnic where she invited all of her internet friends to descend on the farm for a weekend for camping, bonfires, games etc. People came from all over the US and Canada – and pre-9/11, a guy even flew his plane into the local airport. In the end, she hosted a summer Solstice FFP open to everyone and a winter Solstice FFP that was only open to close friends. For years, this was our twice-yearly ritual and of the core group of people, almost no one missed coming.

Sadly, all good things come to an end and the end of the FFP was abrupt and traumatizing. My friend moved away from the farm, got remarried, traveled the world and is now settled in upstate New York. Happily, the core group of people from that time still remain friends to this day even though many of us have moved states, provinces and even continents. Bless you, internet.

When I medically retired from my job in social media I started to pull back and cull my SM accounts but I still wanted to keep in touch with friends. So we all downloaded Signal and started a group chat with 3 other friends who I’ve stayed close to since the FFP days. The timing for this couldn’t have been better: soon after the group chat ramped up, the pandemic set in.

During the pandemic our group chat was a lifeline. We also had our weekly Trivial Pursuit nights and finally last year we were all able converge in Denver for an in-person visit, which is the closest we really got to the “middle” of where we all lived considering we are in Mountainview, CA; Philadelphia, PA; Denver, CO and I am up here in Canada. It was a great visit and we had all missed each other a lot.

I think that outside of my family, I speak to these three other people daily, even if it is only to share our Wordle score. I’ve slowly come to learn that our Wordle score is our love language. Some days we talk all day long, some days we don’t chat at all but almost always without fail, we always share our Wordle score. It’s become a low-stakes stand in for us to say to each other: hey, I am here. I am alive. We’re connected.

I suppose I didn’t really appreciate this connection until recently when we had a power outage. Of course, when mother nature shows you that human technology is no match for her power, it’s always an adjustment. Sitting eating dinner by lamplight I realized just how amazing it was that some of the closest people in my life could be scattered across two countries and coasts. I realized that even that small connection of doing the Wordle daily left a big hole when I didn’t have it in my life.

We’ve talked a lot about what relationships and social activities look like in a post pandemic world. As a disabled person, this has been an ongoing conversation since even before 2020. In a world that isn’t exactly accessible, our social lives can become burdens as we navigate things no one else has to think about. Having been able-bodied previously, I absolutely understand what it is like to just grab your purse and run out the door to meet up with friends. Now, it is a question of making sure that a place is accessible, that the bathrooms aren’t downstairs, that there are hand railings for me to use. It is even more effort for people who are more disabled than I am.

So in one sense, the pandemic just made us all suddenly think about how interacting with others looks like when you actually have to stop and to think about safety. On the other hand, I think we all realized just how having 100% of our social lives online really is lacking. Much of our communication as humans is non-verbal: it’s about the contagious laughter, the look of sadness in a friend’s eyes, it’s about how being around others makes us feel. While words on a screen are a great way to stay connected, it isn’t the most fulfilling way.

So yes, the Wordle is my love language: it lets my friends know that I am here and that I am available to chat about things big and small. But conversely, the Wordle is no replacement for our get together in Denver last year. Words are important but so is being in the same room with friends. It’s about the dumb jokes, the weird thing that happened at the restaurant that we’ll still laugh at 20 years from now. It’s about the connections, shared meals, ridiculous travel stories.

I don’t know what the future will hold but as we edge further away from the worst of the pandemic, I find I crave the in-person company of my friends more and more. It seems that everyone is still in varying degrees of worry about the pandemic as well. Some people believe the worst is over and have gone on with their lives normally and some people are still terrified of catching it and worry about the long term effects. I don’t think there is an easy answer here. If anything, we should all be kind and accommodating to everyone’s needs. With summer on the horizon, I plan a bunch of social events that we can hold outside to ensure that everyone can feel included. Of course, for my local friends that continues to be at least an option. Even with our horrendously cold, dark, long winters spring always comes eventually.

But for my dearest old friends further out, I’ll keep sharing my Wordle score.


Saying goodbye after defeating Blucifer

Blue Monday and January

Blue Monday and January

I am simultaneously jealous of all of the sunny destination pictures my friends are posting on social media and not envious of all the people getting stranded, delayed or otherwise inconvenienced by airline issues. When we made the decision to stay home this winter I should have also made the rule to stay of social media to avoid the lovely pics. Today is a beautiful, sunny winter day but when it’s this sunny it also means it’s super cold. It’s beautiful from the inside, I keep telling myself as I wrap another blanket around me.

It’s funny to see how accessible travel is these days for the average person. When I was growing up in the 80s almost no one traveled south or overseas in the winter. The odd person may have driven down to Disney or traveled home to see relatives but travel wasn’t as ubiquitous as it is today. I remember having one friend who went to Greece when I was about 10 years old and it felt like a crazy adventure to me! The 90s saw travel had ramp up a bit but by the 2000s it had exploded. Even after 9/11 when travel took a dip due to fear and increased security measures, I was on a plane a month later visiting a friend in Ireland and traveling to Scotland with her. By the end of the decade, it felt like everyone was hopping on planes to vacation.

Now I miss it if we don’t go away in winter but there was a time that it wasn’t even on my radar. I am trying to bring that feeling back: the feeling of moving with the seasons and coping with the weather around me; changing my activities to suit the season; embracing winter sports and staying indoors by the fire with a cup of tea and a good book. Still, like a petulant child I find myself having temper tantrums in my head because I can’t go somewhere warm. It’s amazing how humans adapt: what was once a rare treat available to few, I now feel somewhat resentful for when I can’t have it – even though it’s self-imposed! Having two kids at home who are invested in school has also meant that they don’t want to take any school off to travel, either. It’s strange to me but clearly I am weirdly proud of their dedication. In the end there are so many factors that keep me grounded – in every sense of the word!

But back to poor, misunderstood January! Yesterday was Blue Monday, which is said to be the most depressing day of the year. But it can’t be all that bad because New Order has an excellent song by that name. Also, January is apparently National Breakup Month. Oooof, poor January.

BUT!

January is also the best time to reflect and go inwards. I don’t know how people in the southern hemisphere feel but up here the cold, dark days post-December revelry is a good time to stop, reflect and take stock of things (especially after all of that feasting and merriment). It’s a period of calm after the chaos that allows you to just be calm for a bit and maybe dry out, eat better and give new routines a whirl.

As for myself, I am trying to catch up on reading all of my library books (who am I kidding: I have never been able to balance these! If I read one, one more gets added to the pile. It’s truly an embarrassment of riches), get back on the meal planning train (the #1 tool in my arsenal to not waste and to save money), and I’m keeping an eye on our budget as EI and CPP start getting taken off of Mr. Tucker’s paycheques again just as I am trying to load our RRSPs in time for the tax season.

In the meantime, for those of you who are having difficulty embracing the cold, dark days of January, I highly recommend Katherine May’s book, Wintering to help you see that even the colder months are special and have something to teach us.

It’s been a hot minute – what I am up to

It’s been a hot minute – what I am up to

WELP. The idea of writing consistently here this year as a New Year’s resolution didn’t happen. Still, I’ve not really spent a lot of time on social media this year and I have definitely kicked my facebook habit (and replaced about 50% of it with an Instagram habit – oops!). Of course, the pandemic is still out there pandemicking but the kids are back in school so that is nice. We had a great summer of outdoor socially distanced hangouts, and now we are settling in to have a lovely autumn full of fun fall activities. But first, maybe a roundup of what has happened in the past 6 months since I last wrote:

Cottaging on Manitoulin island: we have probably shut the door on camping/cottaging with the two other families. Since Sprout was 2, we’ve either Glamped in Quebec parks or we’ve rented cottages. This year we had a lovely week in Dominion Bay where the kids could run around, play games and go for long walks. My friend S did her yearly craft camp for the kids & there was woodburning, leaf painting & other projects completed. I mostly read, and we even headed out to an outdoor farmer’s market (a pandemic first for me!) where I bought cozy wool socks for me, rings made out of antique spoons for the kids, and a pepper grinder from a woodworker for Mr. Tucker.

Unfortunately, during the pandemic there was a run on cottage rentals and even though we tried to book for next year early this summer, there was really nothing to be had that wasn’t $3000 a week – a bit steep. Also, our kids are much older now: Sprout is going to be 12 next year and the oldest kids will be 16 and will probably have jobs. It’s been a good run but it’s time to move on. Not all is lost though! More below!

Gardening: this was our garden’s second year & like the first year we kind of took the “set it and forget it” approach. Still, we got a lot out of it despite the chaos and have learned that we can probably sow an early spring garden, a summer garden & a fall garden. We did end up sowing a fall garden but a little later than I would have liked so who knows what will happen? Despite the cold, the tomatoes are still producing and the basil is going strong. Heck, some of our herbs – like lavender, coriander & dill – have re-seeded and are producing again. Since our goal is to bring those herbs inside for wintering under grow lights, I am happy to see it!

Hopefully we will get some cool weather crops before the snow flies! Then we will pull the dying plants, lay on our home made compost and let the beds winter. Otherwise, we have garlic to plant for next year before the winter sets in.

    Canning, preserving & gleaning: we did most of the things we had done last year that we had enjoyed,

– Horseradish dill pickles
– Tomato sauce
– Spicy dilly beans
– Strawberry and raspberry jam
– Sundried tomatoes

    Some new things,

– Both dill and sweet mustard relish (made when our cucumbers turned yellow)
– Red onion and beetroot chutney
– Marinated eggplant

    Some boozy things,

– We made Nocino from friend’s black walnuts
– We made a bachelor’s jam for Winter Solstice/Yule
– We are now trying our hand at plum wine from our friend’s plums

I am going to do an entire post on all of the things we did & some recipes sometime soon. What’s notable though is what we didn’t do: salsa or tomatillo salsa. We really weren’t going through it as quickly as I thought we would, so we focused on tomato sauce instead.

Money Mondays: this is still going strong! We’ve done sessions on a bunch of things such as the Disability Tax Credit, had a guest speaker to do a presentation on wills, and next week I am doing one on budgets.

Health: the good news is that the ALS clinic told me that I am doing well enough that I only have to come in once every two years! The nurse told me that this was the first time she’s heard the doctor tell someone that so I am pretty proud. Still, I could be doing more work on my health to be quite honest.

– Mr. Tucker and I are taking long walks (I bought a yellow tricycle, which is what I usually take) weekdays. We grab the dogs in the morning, walk Sprout to the end of the street, then we walk the Bean to her bus stop & then we head down to the river for a longer walk (or just through the neighbourhood on busy mornings). It’s been really good for us both to be forced to get up, washed, dressed and out the door. Otherwise we just lounge around the house in our jammies.
– I plan to do #folktober next month to work on my fine motor skills with painting. I bought some nice watercolour paints and I need to encourage myself to use them. Wish me luck!
– I need to clean out my knitting basket to make it more user-friendly. The Sprout reminded me that I said I would teach them to knit and I still haven’t. So again, in the interest of my fine motor neuron skills (and keeping my promise) I should pull that out again.
– My vitamin regimen has made my cycle much better and that in turn has also helped my spasticity.
– I haven’t had alcohol since October 28th, 2020.
– My skin has been just awful so yesterday I was tested for a bunch of things (celiac, thyroid) and my GP is making me appointments with two dermatologists, so we will see how that will play out. I figure this may be an ongoing saga for awhile as appointments are sparse due to the pandemic.

Finances: shockingly, Mr. Tucker has made the decision to work longer in order to put more money into some house-related projects. This means we’ve eased up on our intense budget and instead we are buying more things that bring us joy. For example, we are trying to rehire our old housecleaner again as we’ve decided that our weekends are probably not best spent arguing with the kids over chores. They both know how to clean an entire house so we’ve done our job here. They’ll still have chores, just less of them.

I have also increased our a> grocery budget; and b> our pocket money. We are still saving at an amazing rate but we aren’t as intense as we were for most of this year. We hit our prepayment amount for our mortgage & will contribute to Mr. Tucker’s retirement accounts (but to a lesser degree).

Instead we are also going to…

Travel: both near and far. When we were on Manitoulin Island this summer we made the decision that if cottages were going to be $3000 a week that we would be better off booking a trip down south instead. So that is what we have done. We have tentatively booked a vacation to Jamaica next winter (covid willing!). We booked our flights & house rentals but we did manage to get good cancellation policies so we will see where the world is at come winter.

We also have decided to treat the kids & take them to Canada’s Wonderland for the Halloween Haunt. We ended up buying season passes with another family in the hopes of going back for a couple of days next summer as well.

I would like to also do more things close to home such as heading to various Halloween-themed (outdoor) events in our area. After a year and a half of being stuck at home, I am eager to spread my social wings!

So that is about it for changes around here. Mostly my days are spent reading and parenting & watching shows or playing games as a family. I think we’ve turned a corner on covid – at least in our area of the world – so I hope that stays steady. Overall, life is pretty good.

It’s Friday – beige dinner night. Also: vacations

It’s Friday – beige dinner night. Also: vacations

Well, not all beige. Some nights – like tonight – we’re doing pizza. My favourite recipe for pizza is this Ultimate Vegan Pizza recipe by The Buddhist Chef. Even if you don’t make the cheez (which you should try as it is delicious) it is an amazing recipe for the crust alone. If you oil a square baking sheet before spreading out the crust, it’s even crispier! We’re having it with salad – so again, not beige – but it’s a Caesar salad so the green is just for show.

It’s strange to think about now but we are setting up our plans for summer vacation. Typically we go somewhere in the winter but of course no one is going anywhere this year. As much as we love travel, it’s been nice to not have to have another rushed vacation with the kids. Mr. Tucker also really enjoyed his week at home doing nothing but a few house chores during the week at Christmas. So because of that, he is going to take two weeks off during the summer: one week for the cottage week with two other families, and one week to stay home, relax, and get a few odd jobs around the house.

While these plans chose us this year, it is also nice to be able to save money by not going anywhere this year. Mr. Tucker and I have some fairly intense financial goals over the next three years and so we have actually nixed international travel for the foreseeable future (unless one of us gets an astronomical windfall or raise).

If I am perfectly honest, we’ve also seen a lot with the kids: we’ve been to Disney World twice, Universal Studios once, and we’ve seen most of the Caribbean and many countries in Central America – including a cruise through the Panama Canal. They’ve been on boat cruise in NYC on New Year’s Eve watching the fireworks behind the Statue of Liberty, and stayed in Venice Beach & walked around Hollywood. It’s enough for kids who are only 10 & 12! Besides, the Bean is in jr. high now and taking time off in winter is just not as do-able as it was when they were in primary school.

At the end of our three years of tight budgeting and saving, we can make decisions then. But until we reach the end of those 30 months, it’s going to be very lean: we will have enough to live a really good life but not a little wiggle room for anything outside that. Right now we are leveraging the fact that we can’t go out in the pandemic to kickstart our new habit to reach our goals. Nothing makes staying home easier than an emergency stay-at-home order.

So our rowdy weekend plans include homemade pizza and a movie on the big screen (the projector in our basement rec room). In fact, this pretty much looks like our rowdy weekend plans for the next 3 years – and I am ok with that. Besides, this idiot has 136 more books to read before the end of the year!